Real 65 : The Doctor Is In

Real 65 is a segment of Breathe 3-65 that is dedicated to entries and interviews sharing honest and personal experiences of living with, treating, and loving someone with Cystic Fibrosis.
It is a place for all those impacted to share their stories.

 

Since it is the last day of May and thus the final day of Cystic Fibrosis Awareness month we'd like to share another special REAL 65 with all of you. These are the very special words from someone who has been on the frontline of witnessing advancements in cystic fibrosis. He was Breathe Bravely founder, Ashley's, CF pediatric pulmonary doctor growing up and continues to impact so many lives as a CF pediatric pulmonary specialist. Read his great insight into the incredible advancements of the Cystic Fibrosis Foundation and his experiences through the years as a CF specialist. 

 

"Recently, someone asked me if I’d ever expected to see the progress that has been made in the treatment of CF when I started here years ago. It was the kind of question that made me step back and consider.

What had been my expectations when I moved here 24 years ago? And, as I thought about it, I realized that while I had expected some advances to be made in the treatment of CF, I thought, in a simplistic way, it would likely be in the development of better antibiotics or enzymes or nebulized medications. I don’t believe that back in the 1990's I would have ever conceived that not just one, but two drugs, Kalydeco and Orkambi, would be available for the treatment of some patients with CF.

Nor would I have ever dreamed that there are several more drugs being studied and developed that will work even better than these two drugs and will be available to treat more of those who have CF.

So I guess the answer to her question is no, I would have never dreamed of the advances that have occurred over the last 24 years in the CF world.

And there are two factors that allow me to answer this question in this way and that also allows us to look toward newer, better drugs becoming available for more and more people with CF.

One of these factors is the vision of the CF Foundation in partnering with many labs and drug companies to develop these drugs.

But the most important factor, the thing that makes it possible for the CF Foundation to be able to fund this research, are all the people with CF and those that love and support them. It is because of the devotion and dedication of all who raise funds through bake sales, golf tournaments, wine and beer tasting events and various other fund-raisers including walking in a Great Strides event. And that is because it is only through every baked good sold, every golf ball driven or putted, every item sold or auctioned, and every step taken at a CF walk that the dollars are raised that are necessary to fund the research that leads to these advances.

So, now I can’t wait to see what happens in the next few years…"

 

- About today's contributor - 

James Wallace MD serves as the director of the South Dakota Cystic Fibrosis Center located in Sioux Falls, SD while serving as pediatric pulmonary specialist. 

 

 

Disclaimer: The writings and postings of Breathe 3-65 are a reflection of the personal opinions, experiences, and knowledge of the contributing author. Breathe Bravely is not liable for the statements and personal opinions shared. The material of Breathe 3-65 is provided with the best intention and great care is taken to share information from credible sources. However, the content shared on this blog is not medical advice and is not under any condition a substitute for the medical advice provided by your medical providers. Please consult your care team before making any changes or additions to your current CF treatment plan.