Clearly Invisible : The Unseen Hours
This segment of the blog is dedicated to shedding light on the invisible side of CF- striving to spark dialogue, cultivate understanding, and encourage compassion between all of us.
Take a moment and think about your busy life. What time did you get up this morning? Did you fall into bed after a busy day and have to get up extra early for a morning commitment? Most people are free to plan their day according to their liking and commitments, but for people with CF there is much that happens before, after, and in-between the “goodnights” and “good mornings” just to stay alive.
At the close of an eventful evening spent with friends, when everyone parts way to crawl into their own warm beds for a restful night, many individuals and families with CF know they’ve got another hour before they can think about any shut-eye. When a rambunctious child pleads with their parent to let them play for just a little longer, the parent knows that after that “little bit longer” an Airway Clearance Therapy still awaits them. The morning alarm is set extra early to fit another treatment in before work, school, and taking on the usual demands of a day. Instead of getting some fresh air and a coffee during that afternoon break at work, it is spent doing an ACT. It’s essential that people with CF do several treatments a day of ACT (Airway Clearance Therapy) to keep their lungs most healthy: working most efficiently, loosening thick sticky mucus, and fighting infection. An example of ACT would be a VEST therapy and a neb treatment. The number of treatments and type of ACT done per day varies based upon the unique individual with CF and their specific need.
So, when you fall into bed tonight after a long and beautiful day, take a deep breath filled with gratitude. Then, take a moment to remember all those still awake, fighting for another beauty-filled day.