Who We Are:

***The sINgSPIRE Virtual Choir is made possible through generous support provided by:
VERTEX PHARMACEUTICALS NON-IME GRANT,
THE CYSTIC FIBROSIS FOUNDATION COMMUNITY SUPPORT GRANT, and other numerous generous donors.

About this project: It has always been a great hope that someday our sINgSPIRE community might not only be able to simply connect and sing, but that they would be able to do so as if we were sitting in the same room. Today that hope is realized through an advancing technology called, “JackTrip” that the sINgSPIRE program trialed during 2022.

This evolving technology utilizes a connection that allows us to not only make music as if we are in the same room but deepens the nuanced connection of simple communication, we all take for granted.

In a community that cannot share the same space due to cross-infection risks associated with CF. Such an exciting opportunity defies an isolation we thought impossible to overcome in real-time.

Together, we are doing the impossible. We are breathing beyond borders.

Fourteen individuals living with CF from all over North America singing together. LIVE.

About this project: Our journeys may look different. Our roads may seemingly run along paralleled paths. Our life’s story may simply be unfolding upon a foundation of hope-filled uncertainty. But, within every footstep there are brief moments when our lives and stories intersect. They are unsuspecting moments filled with meaning- a place and time when our paths serendipitously cross.

It’s in those moments our paths find a synchronization in step and our breaths find chorus in the rise and fall of common rhythm. No matter what our paths may look like or where they may lead, it’s those moments that remind us that no one walks alone.

About this project: When we look out over the sea, we do not see the salt suspended atop the crest of every wave. We merely see the reflection of the sky and its rolling breath of life making what’s held within even more invisible to the eye. The eyes of the world rarely see the inward destruction and chaos caused by an invisible disease like cystic fibrosis. The world reflected on the face of those who dwell amidst a misunderstood isolation. Amidst a journey that only few will ever truly know and only from six feet apart.

We hold our breath hoping that someone, somewhere understands. That somehow the depth of our experience, who we truly are from within, and our unrelenting hope might find its way to the eyes that need to see it and the heart that needs to hear it so that they may know they are not invisible. They are not alone.

That no matter the distance, the decades, or the disease that separates us, we together hold a strength within that is silently reflected and found within the beauty of every breath.

About this project: While cystic fibrosis dares to steal every beautiful breath and isolate us from one another, these twenty-six individuals are defying a diagnosis alongside members of our CF community from all over the world. Together, they are uniting their unique and powerful voices representing a life rooted in realized and enduring hope.

Together we create a masterpiece that represents a community in which every voice, every story, and every beautiful breath can find belonging.  

About this project: These seventeen singers are not only separated by thousands of miles but by a disease called “cystic fibrosis” that makes each of them a potential risk to one another due to circumstances of cross-infection- never allowing them ever to meet in person, let alone join together their collective voices in the form of a choir. Even outside of a pandemic, this is the only safe way these singers can come together as one voice.

While cystic fibrosis dares to steal every beautiful breath and isolate us from one another, we are defying a diagnosis by joining our unique and powerful voices together as part of the sINgSPIRE Virtual Choir. Our voices, are a collaboration of strength, tenacity, and unified unrelenting hope that beats within each of us. A hope that someday we might know the weightlessness of what it means to simply “Breathe.”

About this project: These fourteen singers are not only separated by thousands of miles, but by a disease called “cystic fibrosis.” CF makes them a potential risk to one another due to circumstances of cross-infection, never allowing them to meet in person. Let alone join their set of collective voices together as a part of a choir. 

While cystic fibrosis dares to steal every beautiful breath and isolate us from one another, we are defying a diagnosis by joining our unique and powerful voices together as part of the sINgSPIRE Virtual Choir as a collaboration of strength, tenacity, and unified unrelenting hope.

We are the voice of people who persevere.

About the project: These fourteen singers are not only separated by thousands of miles, but by a disease called “cystic fibrosis.” CF makes them a potential risk to one another due to circumstances of cross-infection, never allowing them to meet in person. Let alone join their set of collective voices together as a part of a choir. 

While cystic fibrosis dares to steal every beautiful breath and isolate us from one another, we are defying a diagnosis by joining our unique and powerful voices together as part of the sINgSPIRE Virtual Choir as a collaboration of strength, tenacity, and unified unrelenting hope.

We are stronger together, fighting CF until it’s done.

Interested in using one of the sINgSPIRE Virtual Choir’s projects for your fundraising event, conference, or special event?
Contact Ashley for more details .

A beautiful live hybrid performance of Sing Gently from the Grand Rally at the #nammshow! Eric Whitacre conducted an in-person pianist, string quartet and over 30 singers performing over a JackTrip Labs Virtual Studio, including singers from Breathe Bravely’s sINgSPIRE program.